We found out yesterday. By God’s grace, we are handling the news okay. Some tears have fallen, of course. One of the first things I told Patty was that Lilly has a great mommy. We were both encouraging one another yesterday with the truth that we have a great Lord Who is wise and knows what He is doing. There are many blessings in all of this, both now and in the future. Some current blessings would include the Lord using this to cause us to trust Him more, already meeting some caring people online who have children with WS, and living in a big city with medical care close to us. We are in some ways relieved to finally know, because we can move forward trusting that the Lord has given us Lilly and designed her just the way she is. At the same time, we will pursue medical treatment for her narrowing arteries (FYI: There is no known cure for WS.) and seek to gain insight as to how to care for her. Please pray that Lilly would develop physically. We will be meeting with a geneticist at some point, and also in the first week of October Lilly’s heart and arteries will be checked again. 

I am a blessed man that Lilly is one of the arrows in my quiver (Psalm 127:5). 

Interestingly, I’ve seen the statistic that anywhere from 1 out of 7,500 to 1 out of 20,000 children have WS. If you are interested in reading about this syndrome, you could check out the following sites:

http://en.wikipedia.org/wiki/Williams_syndrome  (brief)
www.williams-syndrome.org (lots of info.)

http://www.wsf.org/ (lots of info.) 

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